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Share your greatness with the world and raise CRMO awareness.
Bringing awareness has been one of the primary goals of the CRMO Awareness 5K Walk-a-Thon since inception. Each year, we share CRMO Warrior stories at our in-person walk - stories spread along the walk route, the Wall of Warriors, luminaries with CRMO Warrior names . . . Since most of us are participating virtually this year, we wanted to create an opening ceremony video that will highlight CRMO Warriors, to share on social media at the beginning of the walk week. This can be an amazing awareness piece that can be shared and can really help others understand what this disease is all about. We can't do it without you!! Whether you are a Warrior, a parent, sibling, friend, grandparent - anyone that is touched by CRMO in any way - we would love to include your story. CRMO affects children AND adults AND entire families - help us spread this awareness. You do not need to be taking part in the 5K to be part of this video. We know that CRMO doesn't define you . . . it is only part of your story. Thank you for participating and helping us bring awareness.
Answer any and all questions you feel comfortable talking about - you can skip anything you don't want to answer. We would love for you to record video if you feel comfortable, or tell your story just by audio or in writing and share some photos. If you answer multiple questions, please do short clips of video/audio - one for each question. If you don't like any of these questions, feel free to do whatever you'd like to bring awareness. This is your story - share it however you feel comfortable.
Tell us about your CRMO Journey:
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Is there a quote that you like or live by? Share it here:
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What is the first word that comes to mind when you hear CRMO?
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Share a triumph, something you've overcome or something good that has come from living with CRMO:
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How does living with CRMO make you feel?
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Share a hardship you face living with CRMO:
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How does CRMO affect your family?
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What is one thing you would like someone to know about CRMO?
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What are your hopes for the future?
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If you are participating in the 5K, why are you walking for CRMO?
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If you have been a recipient of a Kaila's Komfort care package (or other outreach), how has that helped you?
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Is there anything else you would like to share with us about you or your journey with CRMO? Be as creative as you like.
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We would love you to share photos, video clips, a picture you've drawn, share about how you've brought awareness, a craft project . . . anything that you would like to share, we would love to include it in our video. This is your chance to share your story and bring awareness to CRMO. Please feel free to share any files below. If your files are too large or you have more than what is allowed below, please email them to kailaskomfort@gmail.com. Please let us know if you have questions or need help with anything - we want this to be easy.
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Name of CRMO Warrior
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First
Last
Age of CRMO Warrior
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Name of person over 18 years of age submitting information.
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First
Last
I am this Warrior's:
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I am an adult with CRMO
Parent
Grandparent
Sibling
Other
Email
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By checking below, you are giving Kaila's Komfort permission to include any information, photos, or videos that you share in this submission on their website and/or public Facebook page as part of their quest to increase CRMO awareness. I understand that they will never publicly publish any last names or email addresses.
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I agree.
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